Luxembourg National Data Service (LNDS) is a brand of PNED G.I.E. an organisation created by the Luxembourg Government, to implement Luxembourg’s strategies in research, innovation, and digitalisation. LNDS enables value creation from secondary use of data, for public and private partners and supports the sharing and re-use of public sector data, in a trustable manner. The LNDS service portfolio includes know-how, capabilities, tools, infrastructure, and data services. Through efficient & responsible use of data and improving the secondary use of data, LNDS will support the acceleration of economic, ecological, and societal transitions.
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LNDS - 092 ELSI specialist - subsidy projects focused on health/biomedical data (fixed term 24 months)
Luxembourg - Esch-sur-Alzette
Full-time
Fixed-term
70,200 - 78,000 € per year
Who we are
Purpose of the job / project
LNDS participates in several European projects where we support the secondary use of health/biomedical data in the context of scientific research, Artificial Intelligence (AI) development, and other innovative activities. Our aim is to support our partners who pursue secondary use of data in health/biomedical projects in a manner that is lawful, compliant, and ethically sound. As part of these efforts, we routinely work with external stakeholders such as clinical researchers, epidemiologists, data scientists, (health) data infrastructure providers, as well as policy-makers, regulators, legislators and other legal experts. Our aim is to advise and guide these stakeholders in the implementation of data governance frameworks and data infrastructures for secondary use of protected or sensitive data, with a particular focus on health/biomedical data.
You will be part of an interdisciplinary team working on the ethical, legal, and social implications (ELSI) of secondary use of health/biomedical data. You will support, as an ELSI Specialist, the participation of LNDS in the European projects that leverage health and biomedical data, working closely with the LNDS team as well as with European stakeholders and project participants in the various working groups.
You will be part of an interdisciplinary team working on the ethical, legal, and social implications (ELSI) of secondary use of health/biomedical data. You will support, as an ELSI Specialist, the participation of LNDS in the European projects that leverage health and biomedical data, working closely with the LNDS team as well as with European stakeholders and project participants in the various working groups.
What you will do
- Analysis and interpretation of legal and/or ethical requirements in secondary use of health-related data, based on the legislation, prevailing legal and ethical norms, existing guidelines and, where applicable, case law.
- Investigating the impact and compliance implications of the AI Act on the development of AI systems for healthcare and public health applications
- When assisting external partners with their ethico-legal compliance efforts, you will provide analyses of planned operations and workflows as well as provide support related to data protection impact assessments (DPIAs) and other privacy/impact assessments.
- Development of policies, guidelines, and technical requirements frameworks to enable solutions for ethico-legal compliance when pursuing secondary use of health datasets.
- Development of, or contribution to practical tools, templates, guidance, training and other instruments for ELSI compliance.
- Engagement in European working groups and consortia, including preparation of content for periodic meetings, contribution to drafting or reviewing formal documents or deliverables, writing of meeting minutes, and interaction with the working group members.
Who you are
- A master’s or PhD degree with several years of work experience at the intersection of:
- Data protection, data governance, legal and institutional compliance in secondary use of data; and
- healthcare, biological sciences, bioinformatics, genomics, or a related biomedical field
- Candidates with the following background are particularly encouraged to apply:
- Legal professionals, compliance specialists or legal scholars with extensive exposure to the healthcare and/or biomedical research domains
- Biomedical researchers, bioinformaticians, or (health) data scientists with considerable experience in assisting with legal or institutional compliance matters
- Data stewards, data managers, and data governance specialists active in the domain of healthcare and/or biomedical research
- Bioethicists and institutional ethics board members knowledgeable about the applicable regulations
- Number of years of relevant experience: 5 to 10 years (years spent to acquire a PhD degree count as work experience).
- Familiarity with the key European legal and regulatory frameworks, namely: the GDPR, the AI Act, and the EHDS Regulation. At a minimum, demonstrable expertise in at least one of these legal frameworks is required, coupled with a good understanding of the remaining two.
- Familiarity with any other national/European legal frameworks or institutional ethics procedures around secondary use of health and biomedical data is a strong plus.
- Experience with data protection by design and default workflows, data protection/privacy risk assessments, and other related assessments
- Proficient in English.
- You are enthusiastic about the legal aspects of data research or the conceptual and/or technical implementation of data protection principles for workflows.
- Good communication skills (ability to listen, understand and convey your ideas) and the ability to articulate clearly the ELSI needs to a diverse audience (biomedical scientists, legal experts, policy professionals, etc)
- Excellent writing skills. Experience in writing academic or policy papers focused on the ELSI of health/biomedical data is a strong plus.
- Creative, solution-oriented mindset with strong analytical skills.
- You have critical thinking skills; you are adaptable and flexible.
- You have cultural intelligence and diversity consciousness.
About us
What we offer
What sets us apart
The Luxembourg National Data Service is a modern and dynamic undertaking. We embrace a Lean and Agile mindset, combining the entrepreneurial spirit of a startup with the responsibility of a public body on a national mission. We will be a partner of society and industry, collaborating with a hugely diverse group of stakeholders in public research, public authorities, European institutions, academic and private institutions, and small, medium and large companies. Therefore, we have an international and multilingual character. Even in this rather ambitious context, we preserve a warm and personal atmosphere.
Inclusion and diversity are some of our key values. We ensure that everyone has employment and career opportunities in accordance with their skills and aspirations, respecting and being mindful of their individual characteristics.
Join LNDS and revolutionise the data economy!
Be part of our dynamic team driving innovation and making a tangible impact. Collaborate on cutting-edge projects, gaining European recognition in the prestigious European Data Spaces initiative. Shape a transformative future in the data revolution.
Apply now!
Information for Recruitment Agencies:
LNDS as well as all related entities do not accept any candidate submission from unsolicited third parties. Candidates presented by unsolicited third parties (such as recruitment agencies, head hunters etc.), will not be entered into the recruitment process and will not be considered further. Further on, no contractual relationship will result out of such a submission between LNDS and a third party. LNDS is not obligated nor willing to pay any fee to third parties submitting candidates in this manner. Your data is handled according to the compliance guidelines of LNDS.
Data Processing:
LNDS is proud to be an equal opportunities employer. We are committed to providing equal access to employment opportunities to all prospective employees within the recruitment process. LNDS complies with and supports all national and local laws pertaining to non-discrimination. Please note that LNDS is supported by Serendi for Talent Acquisition Services. As LNDS's Recruitment Process Outsourcing provider, Serendi is exclusively in charge of the above-mentioned position. Your data is handled according to the compliance guidelines of LNDS. Please see the Recruitment Data Privacy Statement for more information. If you have any questions your recruiter will be happy to help. www.serendi.com
Pay Transparency:
- Dynamic and innovative work environment
- Collaboration with diverse stakeholders
- Inclusive and diverse culture
- European recognition and impactful projects
- Shape the future of the data revolution
What sets us apart
The Luxembourg National Data Service is a modern and dynamic undertaking. We embrace a Lean and Agile mindset, combining the entrepreneurial spirit of a startup with the responsibility of a public body on a national mission. We will be a partner of society and industry, collaborating with a hugely diverse group of stakeholders in public research, public authorities, European institutions, academic and private institutions, and small, medium and large companies. Therefore, we have an international and multilingual character. Even in this rather ambitious context, we preserve a warm and personal atmosphere.
Inclusion and diversity are some of our key values. We ensure that everyone has employment and career opportunities in accordance with their skills and aspirations, respecting and being mindful of their individual characteristics.
Join LNDS and revolutionise the data economy!
Be part of our dynamic team driving innovation and making a tangible impact. Collaborate on cutting-edge projects, gaining European recognition in the prestigious European Data Spaces initiative. Shape a transformative future in the data revolution.
Apply now!
Information for Recruitment Agencies:
LNDS as well as all related entities do not accept any candidate submission from unsolicited third parties. Candidates presented by unsolicited third parties (such as recruitment agencies, head hunters etc.), will not be entered into the recruitment process and will not be considered further. Further on, no contractual relationship will result out of such a submission between LNDS and a third party. LNDS is not obligated nor willing to pay any fee to third parties submitting candidates in this manner. Your data is handled according to the compliance guidelines of LNDS.
Data Processing:
LNDS is proud to be an equal opportunities employer. We are committed to providing equal access to employment opportunities to all prospective employees within the recruitment process. LNDS complies with and supports all national and local laws pertaining to non-discrimination. Please note that LNDS is supported by Serendi for Talent Acquisition Services. As LNDS's Recruitment Process Outsourcing provider, Serendi is exclusively in charge of the above-mentioned position. Your data is handled according to the compliance guidelines of LNDS. Please see the Recruitment Data Privacy Statement for more information. If you have any questions your recruiter will be happy to help. www.serendi.com
Pay Transparency:
The full‑time base salary range for this position is shown at the top of the job advertisement or is discussed with the LNDS Talent Acquisition team early in the process.
The final offer will depend on several factors, including:
• the scope, complexity, responsibilities, and requirements of the role, and
• your individual profile, such as your education or qualifications, expertise, specialisation, skills, and relevant experience.
If you do not meet all the role requirements or if you significantly exceed them, the final salary offered may fall below or above the stated range.
In addition to your base salary, you may also be eligible for other rewards and benefits, including a competitive performance‑based bonus.
Eligibility depends on LNDS policies and the terms outlined in your employment contract.
• the scope, complexity, responsibilities, and requirements of the role, and
• your individual profile, such as your education or qualifications, expertise, specialisation, skills, and relevant experience.
If you do not meet all the role requirements or if you significantly exceed them, the final salary offered may fall below or above the stated range.
In addition to your base salary, you may also be eligible for other rewards and benefits, including a competitive performance‑based bonus.
Eligibility depends on LNDS policies and the terms outlined in your employment contract.