Purpose of the job / project
The Luxembourg National Data Service is building its service capacity towards a national link to the European Health Data Space. This development is funded under the EU4Health programme and aims to establish the business capacity of a national Health Data Access Body (HDAB) for the secondary use of health data. Within the scope of this project, a Senior Data Stewardship will set up the request management procedure and tooling for the project, as part of the service capacity.
Data stewards are part of our service team and work closely with multiple stakeholders, including data providers, data consumers, research organisations, domain experts, and other teams at LNDS. This position offers the opportunity to not only join but also to take part in shaping up the team, how-to, and operations. This role will also support the implementation of functions defined to LNDS in relevant legislations in the future.
As a Senior Data Steward on the project, you will drive the development and delivery of the HDAB data access request management capacity. This includes the collection and validation of access conditions from different data providers, standardising the information into data request application form, defining the access review procedure and SOPs, compiling requirements of data access management tools, supporting the implementation of the tools to and implementing the data access request management workflowsin the tools. You will work with the other project team members from LNDS, including Project Coordinator, Work Package Leaders, Data Protection Officer (DPO) and ethical, legal and societal implications (ELSI) experts to implement the required compliance measures related to the project. Finally, you will interact with the information security, technology, and data teams to ensure adequate design and delivery of services.
What you will do
● Develop and deliver LNDS’ DM/DS services within the scope of the HDAB project.
● Contribute to other services and the maintenance of LNDS’ DM/DS toolbox.
● Develop guidelines on data management, stewardship and protection for the project
● Contribute to the LNDS’ Data Catalogue by populating, curating, and updating metadata related to data custodians, provenance and use restrictions for datasets of the HDAB project
● Implement necessary General Data Protection Regulation (GDPR) accountability measures for data processing activities involving personal data required by the project
● Perform Data Protection Impact Assessments (DPIA) for data processing activities concerning sensitive data for the project
● Provide training on DM/DS best practices, tools, and related to the DS services of the project
● Develop internal processes and guidelines to support relevant information security and data protection compliances and certifications related to the project
● Engage in (inter-)national projects related to DM/DS service development related to the project
● Train and supervise less experienced team members working on the project
Who you are
Required skills:
● MSc or PhD in natural science or technology, or social science with technical skills.
● 5 to 10 years of relevant experience, including relevant ones in the following areas:
- data stewardship
- data management
- community coordination, outreach and training.
● Working knowledge in data lifecycle management, FAIR data principles (Findability, Accessibility, Interoperability, and Reuse) and the GDPR
● Experience in technical writing (white papers, documentation, reports, policies) and content for dissemination to stakeholders and the public (online guides, tutorials)
● Good working knowledge of one programming language (Python or R)
● Good working knowledge of command line shell (any OS)
● Good working knowledge of basic website authoring (markdown, jinja, HTML)
● Proven experience in one of the following topics:
- Ethical, legal and societal implications in data-driven research projects
- Designing and implementing organisational risk management processes
- Data requests management of sensitive data
- DPIA
- Community building and management
● Excellent verbal communication skills in English.
● Service and collaborative attitude
● Ability and willingness to interact closely with stakeholders
● Ability to handle multiple assignments while working independently and effectively under deadlines
